I just got off the phone with his Pediatician's office. Since he passed his feeding evaluation yesterday with flying colors and couldn't find anything wrong with him they are referring us to a Gastroenterologist! I am getting REALLY sick of these appointments. At what point are they going to say "hmm maybe there is nothing wrong with this happy little baby" instead of "Since we couldn't find anything wrong with him there must be another underlying cause!"
So now he is going in for monthly appointments at his pediatrician's office (his next one is wens), has a neurologist appointment is July 7th, and he is also suppose to start Physical and Occupational Therapy in July as well and now a Gastroenterologist!!!
I am getting really frustrated... why can't they see there is nothing wrong with Lucas... he is just little. He is happy, healthy and all these appointments are stressing all of us out!!! So far I have been going along with all the referrals because in the back of my mind is always "well what if there is something wrong" and Lucas is on Medicaid b/c we can't afford insurance and I don't want to get canceled because we aren't following the advice of our doc (we have been told by other people this can happen.)
Sometimes a skinny happy baby is just a skinny happy baby!
7 comments:
Hang in there Kari. Go to your appointments and humor the medical profession. Then when all is said and done and your sweet happy little guy is deemed a 100 per cent normal little boy you can sit back and say I told you so. In the meantime, be thankful that you have the resources to have all this checked out.
I am going to talk to his pedi on Wens. I really trust his opinion and if he thinks all of these things are necessary then I'll feel better... however one of the reasons I am having a problem with all of these appointments is that I don't think he "knows" about them.
See at 9 months his Pedi suggested the nuerologist (b/c of the slow weight gain, not crawling, not pulling himself up all combined). He told us it would prob take a month to get him in there and that he wanted Lucas to come back every month for a checkup.
Well I never heard from the office about his N appointment but since they told me it could take a month I figured that was why. At 10 months (a month later) the Pedi was out and I saw his nurse practitioner. I asked her about the referal... she checked the chart and saw that it hadn't been made and told me "we dropped the ball on it I will make sure it happens right away"
Well a few hours after we left the office I had a call from the nurse saying that they were working on the N referal and while we waited they would refer us to the children's hospital to see if he would need PT. We were never told about the feeding evaluation. Then I get a phone call from the children's hospital and they said we had an appointment for a feeding evaluation.... so we went. When we were there I asked about his PT evalucation (they said they were never made by his Doc office but they would make us a tentative appointment in case our Dr decided we needed one)
So today the office called saying we were referred to the gastro. I asked them about the PT referal and they said they were made at the same time as the feeding referal and that the children's hosp must have lost them... (so who knows)
So I think all the referals where made by the nurse pracitioner to cover their asses to make up for not making the original N referal on time.... and now everyone seems to be making referals...
Like I said I go to his pedi wen. I am going to make sure I see the Pedi and NOT the Nurse practitioner and find out if they are necessary. If he thinks so I will have no problem with them and I would rather be safe then sorry.
I remember being so frustrated with the whole allergy thing and the NP. Its all over now and doesn't even compare to what you've been going through month after month. Last month when I took Shane in I saw the Dr. and the office staff lady I thought was snooty (That is in love with Lucas) was so sweet to me and loved Colby and Shane. The appointment went well but we saw the DR. The Np took out Colby's bb and that went fine but I still have weird feelings towards her because of the whole allergy thing. (Not that anything that happens to us is going to make your situation any better or worse so forgive my blabber. Also I always tell them that these are Lucas' cousins when I go) I think you talking to the Dr. and finding out the reason is the best thing to do.
Wow hon, that all sounds like a load of poopie to me!!! Everyone who knows you knows Lucas is happy and healthy - HECK! even I know and all I've got to go on are pictures!! Definitely talk to his Pedi, because it seems like everyone else is just refering for refering's sake and you must be going NUTS!!!
I'll send you all the happy, un-stressed vibes I can spare! In the meantime, keep your head up... even if you do have to go to all the stupid appointments, at least you'll get them to leave you alone after they realize how perfect he is ;)
Medicade will not kick him off because you don't follow your doctors advice I was in the hospital with Kaliegh every week from the day she was born until I said NO MORE!!!! When she turned 1 I got fed up with it...with the doctors, hospitals, telling me she had heart problems,lung problems,kidney failure...and everything else you could possibly think of. All medicade wants you to do is make sure he has his regular appointment. If I would not have spoke up for Kaliegh who would have, she went through enough is what I told them.And when I saw or though there was a problem then we could do more but until I thought something was wrong she has had enough. That is your baby,no one is around Lucas more than you.You know him better than anyone else. You are doing a great job at raising him and making sure he has and gets what he needs.Don't let anyone try to tell you different. Otherwise he is going to be just like Kaliegh terrified at just the site of walking into a doctors office.And she is 4 now and is TERRIFIED of going to the doctor. You just don't be affraid to speak up for him because if you don't who will.
You are a great mother and don't think for one second just because you say he has had enough you are doing anything wrong.I spoke up for Kaliegh and she is wonderful,and if she could she would probably say thank you for not putting me through it anymore.
You are wonderful to him and don't ever dough yourself for a minute.
maybe now that you can show the pedi he is crawling and pulling himself up AND depending on how much weight he gains he will say to wait on the referrals and just do a check up in a month again. At least you wouldn't have to have any OTHER appt's.
Tell the dr that his Cali cousins showed him some new eating tricks so everything is cool now.
I know when you are venting you are not necessarily looking for advice but keep in mind that the Dr's see hundreds and hundreds of babies and it won't hurt to REMIND him of all the crap you have been through.
Take care, Lucas is really ok- after spending a week with you guys I can really vouch for you. LOL!!
It may be frustrating, but you never want the doctors to say "I told you so." Go to the appointments and tell the doctors how frustrated you are. Maybe they will get it together! I'm sorry you are dealing with all of this, but it will pass . . . then you can worry about dating!
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